An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process

Marion Mathieu (1) , Constance Hammond (1) , David G. Karlin (1)

1 INMED - INSERM U901 - Institut de Neurobiologie de la Méditerranée [Aix-Marseille Université]

Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow " trainees " to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.

Mots clés: PRIMARY CILIARY DYSKINESIA; BIOMEDICAL-RESEARCH; GENETICS; PRESS

Domaines: Médecine humaine et pathologie

Marion Mathieu, Constance Hammond, David G. Karlin. An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process. PLoS Biology, 2015, 13 (e1002067), ⟨10.1371/journal.pbio.1002067⟩. ⟨hal-01226864⟩