What is the effect of self-identified HIV activism in willingness to participate in HIV cure-related clinical trials? Results from the ANRS-APSEC study.

Marion Fiorentino (1) , Christel Protière (1) , Luis Sagaon-Teyssier (1) , Mohamed S. A. Mohamed (1) , Lisa Fressard (2, 3) , Michael Arnold (4) , Olivier Lambotte (5) , Janine Barbot (6) , Sylvie Fainzang (7) , Laurence Meyer (8) , Cécile Goujard (5) , Marie Préau (9) , Bruno Spire (1) , Marie Suzan-Monti (10)

1 SESSTIM - U1252 INSERM - Aix Marseille Univ - UMR 259 IRD - Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale
2 VITROME - Vecteurs - Infections tropicales et méditerranéennes
3 ORS PACA - Observatoire régional de la santé Provence-Alpes-Côte d'Azur [Marseille]
4 AP-HP Hôpital Bicêtre (Le Kremlin-Bicêtre)
5 service de Médecine Interne et d'Immunologie Clinique [AP-HP Hôpital Bicêtre]
6 CEMS - Centre d'étude des mouvements sociaux
7 CERMES3 - UMR 8211 / U988 / UM 7 - CERMES3 - Centre de recherche Médecine, sciences, santé, santé mentale, société
8 CESP - Centre de recherche en épidémiologie et santé des populations
9 GRePS - Groupe de Recherche en Psychologie Sociale
10 ORS PACA

Enrolling people living with HIV with undetectable viral load into HIV cure-related clinical trials (HCRCT) is challenging. Few data are currently available about the individual factors that influence willingness to participate in HCRCT (WPHCRCT). We hypothesised that WPHCRCT would be more frequent among people living with HIV considering themselves HIV activists. The objective of this study was to investigate the individual characteristics associated with both WPHCRCT and self-identification as an HIV activist.

Keywords: cure research; cure trial; willingness to participate in clinical trials; activism; HIV; France

Domains: Life Sciences [q-bio]; Microbiology and Parasitology; Bacteriology; Life Sciences [q-bio]; Microbiology and Parasitology; Virology; Life Sciences [q-bio]; Microbiology and Parasitology; Parasitology; Life Sciences [q-bio]; Human health and pathology; Cardiology and cardiovascular system; Life Sciences [q-bio]; Human health and pathology; Emerging diseases; Life Sciences [q-bio]; Human health and pathology; Infectious diseases

Marion Fiorentino, Christel Protière, Luis Sagaon-Teyssier, Mohamed S. A. Mohamed, Lisa Fressard, et al.. What is the effect of self-identified HIV activism in willingness to participate in HIV cure-related clinical trials? Results from the ANRS-APSEC study.. Journal of Virus Eradication, 2019, 5 (3), pp.152-162. ⟨hal-02466813⟩