Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment

Stéphanie Clavé (1) , Michel Tsimaratos (2) , Mohamed Boucekine (1) , Bruno Ranchin (3) , Rémi Salomon (4) , Olivier Dunand (5) , Arnaud Garnier (6) , Annie Lahoche (7) , Marc Fila (8) , Gwenaelle Roussey (9) , Francoise Broux (10) , Jérôme Harambat (11, 12) , Sylvie Cloarec (13) , Soraya Menouer (14) , Georges Deschênes (15) , Isabelle Vrillon (16) , Pascal Auquier (1) , Julie Berbis (1)

1 CEReSS - Centre d'études et de recherche sur les services de santé et la qualité de vie
2 TIMONE - Hôpital de la Timone [CHU - APHM]
3 Service de Néphrologie Rhumatologie Dermatologie
4 Service de néphrologie pédiatrique [CHU Necker]
5 Service de Néphrologie
6 CHU Toulouse - Centre Hospitalier Universitaire de Toulouse
7 CHRU Lille - Centre Hospitalier Régional Universitaire [Lille]
8 CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier]
9 CHU Nantes - Centre hospitalier universitaire de Nantes
10 Hôpital Charles Nicolle [Rouen]
11 Centre de Référence du Sud Ouest des Maladies Rénales Rares
12 BPH - Bordeaux population health
13 CHRU Tours - Centre Hospitalier Régional Universitaire de Tours
14 Hôpital de Hautepierre [Strasbourg]
15 Service de néphrologie et pédiatrie générale [CHU Trousseau]
16 CHRU Nancy - Centre Hospitalier Régional Universitaire de Nancy

Background: To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life. Methods: All adolescents initiating haemodialysis between September 2013 and July 2015 in French paediatric haemodialysis centres were included. Quality of life data were collected using the "Vécu et Santé Perçue de l'Adolescent et l'Enfant" questionnaire, and coping data were collected using the Kidcope questionnaire. Adolescent's quality of life was compared with age-and sex-matched French control.

Keywords: End-stage renal disease; Adolescents; Initiating haemodialysis; Quality of life; Coping strategies; Bayesian models

Domains: Life Sciences [q-bio]; Santé publique et épidémiologie

Stéphanie Clavé, Michel Tsimaratos, Mohamed Boucekine, Bruno Ranchin, Rémi Salomon, et al.. Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment. BMC Nephrology, 2019, 20 (1), ⟨10.1186/s12882-019-1365-3⟩. ⟨hal-02473075⟩