The Patient-Reported Experience Measure for Improving qUality of care in Mental health (PREMIUM) project in France: study protocol for the development and implementation strategy

Sara Fernandes (1) , Guillaume Fond (2, 3) , Xavier Zendjidjian (3) , Pierre Michel (4, 5) , Karine Baumstarck (2) , Christophe Lançon (6) , Fabrice Berna (7) , Franck Schürhoff (8) , Bruno Aouizerate (8) , Chantal Henry (9) , Bruno Etain (9) , Ludovic Samalin (10) , Marion Leboyer (9) , Pierre-Michel Llorca (10) , Magali Coldefy (11) , Pascal Auquier (12) , Laurent Boyer (12)

1 Laboratoire de Santé Publique
2 AMU - Aix Marseille Université
3 APHM - Assistance Publique - Hôpitaux de Marseille
4 Service d'Hépato-Gastroentérologie [CHU Rouen]
5 AMSE - Aix-Marseille Sciences Economiques
6 Pôle de psychiatrie
7 FMTS - Fédération de Médecine Translationnelle de Strasbourg
8 Fondation FondaMental [Créteil]
9 IMRB - Institut Mondor de Recherche Biomédicale
10 NPsy-Sydo - Neuro-Psycho Pharmacologie des Systèmes Dopimanégiques sous-corticaux
11 GC (UMR_8504) - Géographie-cités
12 CEReSS - Centre d'études et de recherche sur les services de santé et la qualité de vie

Background: Measuring the quality and performance of health care is a major challenge in improving the efficiency of a health system. Patient experience is one important measure of the quality of health care, and the use of patient-reported experience measures (PREMs) is recommended. The aims of this project are 1) to develop item banks of PREMs that assess the quality of health care for adult patients with psychiatric disorders (schizophrenia, bipolar disorder, and depression) and to validate computerized adaptive testing (CAT) to support the routine use of PREMs; and 2) to analyze the implementation and acceptability of the CAT among patients, professionals, and health authorities. Methods: This multicenter and cross-sectional study is based on a mixed method approach, integrating qualitative and quantitative methodologies in two main phases: 1) item bank and CAT development based on a standardized procedure, including conceptual work and definition of the domain mapping, item selection, calibration of the item bank and CAT simulations to elaborate the administration algorithm, and CAT validation; and 2) a qualitative study exploring the implementation and acceptability of the CAT among patients, professionals, and health authorities. Discussion: The development of a set of PREMs on quality of care in mental health that overcomes the limitations of previous works (ie, allowing national comparisons regardless of the characteristics of patients and care and based on modern testing using item banks and CAT) could help health care professionals and health system policymakers to identify strategies to improve the quality and efficiency of mental health care.

Keywords: COM; PARIS team

Domains: Life Sciences [q-bio]; Human health and pathology; Psychiatrics and mental health

Sara Fernandes, Guillaume Fond, Xavier Zendjidjian, Pierre Michel, Karine Baumstarck, et al.. The Patient-Reported Experience Measure for Improving qUality of care in Mental health (PREMIUM) project in France: study protocol for the development and implementation strategy. Patient Preference and Adherence, 2019, 13, pp.165-177. ⟨10.2147/PPA.S172100⟩. ⟨hal-02473651⟩