Development of an international core domain set for medium, large and giant congenital melanocytic naevi as a first step towards a core outcome set for clinical practice and research

W Oei (1) , a C Fledderus (1) , P I Spuls (1) , C a M Eggen (1) , J Kottner (2) , C M a M van Der Horst (1) , A Wolkerstorfer (1) , M S Van Kessel (3) , S Krengel (4) , Heather Etchevers (5) , I J Korfage (1) , S G M Pasmans (1)

1 Erasmus MC - Erasmus University Medical Center [Rotterdam]
2 Charité - UniversitätsMedizin = Charité - University Hospital [Berlin]
3 Naevus International Patient Representative Working Group Leader
4 Dermatological group practice, Lübeck
5 MMG - Marseille medical genetics - Centre de génétique médicale de Marseille

Medium, large and giant congenital melanocytic naevi (CMN) can impose a psychosocial burden on patients and families, and are associated with increased risk of developing melanoma or neurological symptoms. Lack of consensus on what outcomes to measure makes it difficult to advise patients and families about treatment and to set up best practice for CMN.

Mots clés: Core outcome set; outcome domains; congenital nevi; melanoma; clinical research

Domaines: Médecine humaine et pathologie; Cancer

W Oei, a C Fledderus, P I Spuls, C a M Eggen, J Kottner, et al.. Development of an international core domain set for medium, large and giant congenital melanocytic naevi as a first step towards a core outcome set for clinical practice and research. British Journal of Dermatology, 2020, ⟨10.1111/bjd.19694⟩. ⟨hal-03156673⟩